Some of my posts are about this condition, which I was diagnosed with in 2003. It’s a structural, collagen condition which has no cure, only management. I suffer chronic pain with it, unfortunately.
After my diagnosis I was helped enormously by the C.O.P.E pain management team at at the National Neurological Hospital in Queens Square, London.
If you suffer from EDS please do feel free to get in contact.
For further info, also see this site:
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